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MODY is a rare form of diabetes which is different from both Type 1 and Type 2 diabetes, and runs strongly in families.
​MODY is caused by a mutation (or change) in a single gene. If a parent has this gene mutation, any child they have, has a 50% chance of inheriting it from them. If a child does inherit the mutation they will generally go on to develop MODY before they’re 25, whatever their weight, lifestyle, ethnic group etc.

​The key features of MODY are:

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  • Being diagnosed with diabetes under the age of 25.

  • Having a parent with diabetes, with diabetes in two or more generations.

  • Not necessarily needing insulin.

MODY is very rare compared with Type 1 and Type 2 diabetes – experts estimate that only 1–2% of people with diabetes (20-40,000 people) in the UK have it. But because MODY is so rare, doctors may not be aware of it, so it’s estimated that about 90% of people with it are mistakenly diagnosed with Type 1 or Type 2 diabetes at first.
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